I finally returned blood work healthy enough for the Lumbar on Thursday and off we went to Gotham. After the procedure and 8 hours laying upside down on my back without moving anything but my mouth and eyes, I survived the Lumbar without even a trace of a headache! Yea!
We went back to Green Park clinic on Friday but I couldn't stand that day or Saturday (protocol not to stand the days of or immediate day after a procedure),. So, Monday physio (our last day in India) was my first opportunity to stand/walk againv and I was really excited to try again! But when I arrived in the physio room, I found a surprise waiting for me. Dr Shroff had decided my core was strong enough to cut the hip and core support off my calipers (standing braces)! So I faced my newest challenge - standing on leg braces and a separate, softer ab binder, without any hip support. Basically I was at the point at which they start paraplegics. Of course it was horribly tough, but I was able to hold my self stable for about 20-30 seconds and was able to initiate 2 steps while being spotted/supported by Dr. Shroff and Rajni, my phisio. A place to start, a new path to take.
You can't fathom what those last 10 days in India were like for me... For a gal who, three years ago, was told none of the muscles below my chest would ever work again, these improvements are nothing less than miracles.
So after 27 travel hours mom and I arrived home with a new direction to take. I've been home for 5 1/2 weeks now and am still working hard! It's difficult for mom and me to get me up in the calipers as it takes at least two people to get me up and down/up to the parallel bars while I'm in those braces, but we do try when dad is home. In addition to the calipers and parallel bars I try to gget in my standing frame for 1-2 hours at least 6 days a week, do my functional electronic stimulation 1-2 hours 3-4 times a week, do my bioness (electronic stimulation) unit for 1 hour on each hand every day, do hand weights every day and do mat/total gym workouts (for my core, hips, balance and legs) for 1-2 hours 3 times a week with Rodney, my trainer, and 2 times on the weekends with dad. We went to Roll2Walk the week before Thanksgiving and they said there was a big difference in my legs and they could definitely tell improvement! I'm planning to go back at least 3 more times before we go back to India February 22, 2011.
I'll keep you all posted!