Hi y'all! So after... the lift going out and delaying us 30 minutes at nutech... being carried down marble stairs by at least one dude in flip-flops (subsequently missing what I hear was a really fun hallway dance-off while waiting on the lift)... barely making my flight because they wanted to take/check my chair at the first american airlines check-in/luggage check counter and put me in a circa-1924-sanitoriumesque metal and hammock canvas - held together by enormous rusty nails - monstrosity of a wheelchair for the TWO HOURS before my flight (uh, no... it hurts to sit... it hurts to sit on my nice air cushion, it really hurts to sit on other cushions and it's excruciating to sit on hard surfaces, not to mention how dangerous it is for me – I could end up with really bad skin ulcers) and I refused there... and refused again to get out of it at security unless it went with me and they said no and then I cried and it took the AA counter girl, our handler/helper guy, a super sweet female guard and equally nice male guard an hour to figure out they could x-ray it at the AA baggage check-in and walk it through security, only leaving me in the circa 1924 monstrosity for about 20 minutes... then our awesome helper dude got me on the plane and we thought all was well.... until we taxied for half an hour and the captain came on saying they had identified a "mystery bag" before we left the gate and "forgot" to remove it from the plane so we had to return to the gate..... an hour later our captain let us know the passenger we went back to pick up had boarded and we were ready to take off, hmm... passenger? still not sure about the mystery bag. Eh… 19 hours later in Chicago we barely made our flight (although someone somewhere had already rebooked us on a later flight) 3.5 hours later we arrived safely at my “puppyless”, empty Dallas home (Thursday morning), crashed and drove to Oklahoma City to get the dogs and see my brother yesterday… The puppies were insane for a solid hour, so sweet!
It was so hot here this past weekend, I thought I was sitting inside the actual sun itself. SERIOUSLY. And I live in TEXAS! It got up to 112/113... luckily the humidity was low, so it wasn't as bad as Texas hottest hot, but... DANG!
6 days left, but who's counting? I'm conflicted... so ready to go home to my puppies, family and dear friends... but, I will miss the wonderful patients, doctors, nurses and staff here. And, of course I want more treatments! =)
So, since I last updated you, I've had all my several major procedures and have one more under the arm procedure left (as well as daily injections/infusions) and a caudal - lower spine. We leave the clinic 8:30pm Wednesday (4/28).
Typically with the spinal procedures I have felt a tightness/tingling/electric shock in scattered areas of my body and they quickly go away after the injection/procedure is completed. However, I felt the tightness/tingling at the sight of injury, across my shoulder line, down my left arm/hands/fingers, in spots of my right arm/pinky and ring finger, and from the top of my ribcage all the way down to my toes (all toes of the left and right big toe) and it stayed for about 30 minutes after the injection/procedure. Dr Ashish says where those feelings manifest during the procedure indicates where the stem cells are migrating... so, pretty much everything is getting covered! I'll describe more later, but here's an update from mom.
From: Lola Davis
Sent: Saturday, April 24, 2010 11:28 PM
Subject: FW: How are you both?
It has been a long three weeks since I've been on the computer. Shannon has had a number of procedures and we have traveled to the big hospital again.
UPDATES We are coming home! We will leave here Thursday, April 29th at 12:30 a.m., around noon on Wednesday, April 28th your time. We arrive in DFW around 9:00 a.m. on Thursday the 29th for a flight time of 17+ hours. We are torn about coming home right now. We want to be home but hate to leave the treatments, too. We will most likely return in September/October, schedule allowing. RESULTS As you know, Shannon had some rough responses to a lumbar puncture and that took about a month to over come but she is now quite rallied. But subsequently, she has had wonderful responses overall to the stem cell treatments. As you know, there are short term negative feelings such as pain, headaches, and fatigue, but those fade. The positive results are well worth that. To date she has had feelings and sensations in all limbs of her body during several of the treatments. The most recent having the strongest and most lasting sensations. During the last 3 day procedure (epideral injections) she felt both legs, feet big toes, and all toes on the left foot, strong feelings in the left arm, hands and fingers, lighter feelings in right arm and not all fingers, her core (back, chest, abs), and sight of injury. The sensations typically go away rather rapidly, but there are some that have remained and new abilities have emerged as well. She was not able to move her fingers in the left hand beyond some slight fluttering but is now able to make the pincer grasp with finger and thumb, move all of the fingers, and increase strenght in the grip of the right hand. This is a major recovery for her and she is doing physio on her own to help keep it and strengthen it. She has purchased some items that will help her practice the new abilities.. The next big thing is that she was able to release the binder on her calipers so that she was standing using her core muscles (back and abs) to help her remain upright and to also do some forward pushups on the bars. This was a major goal for this trip and she mastered it!! One thing that did hold her back on this was her BP(blood pressure crashing and getting dizzy) problems. Her BP has been more stable this past week and I can tell an increase in her strength and endurance. She is "connecting" to her legs and or feet during this exercise more and more. It is when she is in the calipers that she moves (steps) forward with assistance from the physio doctor. This forward step is designed to activate the hip flexors. She has also felt her quads work and so did I!! She felt her quads kick in and lift her pelvic. She excitedly told me and then was able to do it several more times so that I could feel it, too. She was able to do that one more time and keeps trying to build that connection. There are many other smaller changes happening as well, touch sensations happening in her legs and feet, muscle movements in her legs that she is able to control some of the time, sitting more upright and increasing in balance while sitting, I saw her big toe flicker last night as she concentrated on moving it, and other stuff. She is sleeping in this morning so I won't wake her to get more specific updates at this time. She will take this email and update her facebook and blog, so there will probable be more info in those later on. SO, are these treatments working. YES. We will work to create a diagram to document where and what she has recovered to date. Don't know when.......but I think it is important to do so. The stem cells will continue to work when we come home and I know Ed will have her taped to the Total Gym for 24 hour workouts--lol. ( Trent and Shannon know his intense, focused coaching methodology--"Five more good ones then we will stop"---however, it may take 100 reps to get those 5 good ones!) The trip back in September/October is to infuse her with fresh cells so that the work continues! We are under a terror alert right now and are keep close to the clinic plus it has already been up to 112 and dry so it is hard to be outside. Love to all, Lola
Ours was interesting to say the least... So, Joyti, the Nutech Clinic Manager wanted us to be able to celebrate Easter "American style" (which was such a sweet gesture)...
*Easter egg painting at 10:30 a.m.(i made an African War Paint egg),
*Deviled egg making at 11 am,
*Fried chicken dinner and viewing of the 1976, 6-CD (YES 6, COUNT 'EM) version of Jesus of Nazareth at 6:30pm
*and finally a special tribute to Easter with a "HAPPY BIRTHDAY EASTER" cake ...